Submission form for consultation on paediatric cancer treatments in New Zealand

Feedback on Rule 8.1b of the Pharmaceutical Schedule

Te Pātaka Whaioranga – Pharmac is exploring whether special measures are needed to access paediatric cancer treatments that aren’t on the Pharmaceutical Schedule and, if so, whether the current approach (rule 8.1b) is appropriate. To do this we need to better understand the difference that rule 8.1b is making to the lives of children with cancer, their family and whānau, and the people who are working hard to support them.

The full discussion document and other resources

In addition to standard background information, we have provided focus questions to help shape your feedback. You don’t need to respond to all the questions – only the ones you want to. The final question is open for you to add anything that hasn’t been covered by the earlier questions.

Consultation closes at 9am, 27 March 2023.

Alternative formats

Microsoft Word form (Macros enabled) [DOCX, 48 KB]

PDF form [PDF, 116 KB]


Note: This page will not save the information you enter until you submit the form. If you navigate away from this page, you will lose the information you enter. 

There is no limit to the text you can write in response to our questions.

Background information
Are you one or more of the following? (Tick as many boxes as appropriate.)
How old are you?
Which of these ethnic groups do you strongly identify with? (Tick as many boxes as appropriate.)

If you've provided an email address, we will be in touch to confirm we have received your submission and tell you when a summary of submissions has been published online. 

Let us know if you we can contact you:

Your feedback may be shared

We will only use your information to inform our review of rule 8.1. Feedback we receive is, however, subject to the Official Information Act 1982 (OIA). Please be aware that we may need to share your feedback, including your identity, in response to an OIA request. 

If you want any part of your feedback treated as confidential, you need to tell us which information and why. For example, would you like us to withhold your identity or a particular part of your submission because it is personal, confidential, commercially sensitive, or proprietary? If your request meets the Official Information Act criteria we won’t be required to disclose it.

Pharmac's privacy statement 

How well do we understand child cancer and the system of care?
How effective is rule 8.1 in terms of achieving the best health outcomes?
Does the current policy support efficient and sustainable use of available resources?
Does the current policy support equity?
Other information or thoughts?