OIA response: multiple scerosis (MS) patient numbers

Request for information relating to the number of multiple sclerosis patients who might be eligible for new biologic therapies.

2 October 2020

Dear [name and contact details redacted]

REQUEST FOR INFORMATION

Thank you for your request dated 22 September 2020 under the Official Information Act 1982 (OIA) for information relating to the number of multiple sclerosis patients who might be eligible under a widening of access proposal for new biologic therapies. You asked for:

  • the approximate numbers of:
    • Those who would be at Expanded Disability Status Scale (EDSS) 5 now and on no treatment
    • Those grandfathered patients on ABC [Avonex, Betaferon, Copaxone]

Please see the below table outlining data compiled for the Multiple Sclerosis Treatment Assessment Committee (MSTAC).

Question

Answer

Date of data

Those who would be at EDSS ≥5 now and on no treatment

19 patients

March 2019

Those grandfathered patients on ABC at EDSS ≥5 now

20 patients

July 2018

We trust that this information answers your queries. We are making our information more freely available, so we will now publish selected OIA responses (excluding personal details) on our website.  Please get in touch with us if you have any questions about this.

Yours sincerely 

Rachel Read
Manager, Policy and Government Services